I know seizures after an AV Malformation is pretty common, but mine have started fifteen years after my brain aneurysm caused by an AV Malformation. I had my surgeries in 1996 when I was seven years old, but I have just discovered I will have seizures the rest of my life from this at twenty-three. It's a hard pill to swallow. Was wondering if anyone else has had such a large gap between their AV Malformation correction and their seizures?
Hi maryboo 89. This sub-group may have some answers for you…http://www.avmsurvivors.org/group/avm-with-seizures-epilepsy
Make certain that you are seeing a seizure specialist…not all neurologists specialize in that area. Also, stay away from alcohol.it lowers the body’s resistance to seizures.
This link might be helpful…http://www.aesnet.org/find-a-dr/find-a-doctor-epilepsy-com
Do not be put off by the label epilepsy…it is just a starting point for most people searching for a doctor who specializes in seizures.
Thank you very much Barbara!!
I think that it’s definitely a long gap but very normal. My seizures started during my emboilization’s.