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AVM Survivors Network

Seizure 3 years after rupture

#1

My daughter's AVM ruptured on December 2012 in her posteria fossa. She's had surgery and embolization and her AVM was obliterated in May of 2013. She had a seizure for the first time this last weekend. Has anyone else experienced a seizure that long after their AVM? She was given Keppra. What side effects have you noticed with Keppra?

#2

I didn’t have any side effects while on Keppra but I don’t think that I ever had a seizure. It was more of a precaution since my bleed was cranial. Brain stem. I wish I had more information. Hopefully someone will.

#3

I was placed on Keppra for seizures that started happening after my second intracranial bleed. The side effects I experienced most were exhaustion, memory problems and panic attacks. Everyone reacts differently to these types of drugs. Eventually my neurologist took me off it because of these side effects though.

#4

Hi Sandradee, I too am taking Keppra and have done since my rupture in 2013, They initially wanted to give me it for a short 3 months and then take it away but because I still had an AVM that needed treatment they kept me onit, I have no side affects that I'm aware of and it has been descried to me as the Rolls Royce of anti seizure meds (because its a go to one with few people being affected by side effects) That being said everyone is different :) , Obviously after a rupture the brain changes and this is why anyone that has had a rupture or any other kind of brain trauma "may" be asked to take anti seizure meds. As someone that's had 2 seizures in the past (which I think is very few) I would still rather take the Keppra for the rest of my life than have another one. I wish your daughter and you the best, Take care and hope this helps a little.

#5

I had an embo followed by surgery as well. My first seizure was within a few months, second a year later, third almost exactly a year later and I think I had two that following year. I'm now on generic Keppra, 1500mg 2x/day-- I started at 500 2x/day I think. My side effects were anger, depression and loss of appetite. I found that taking it on a regular schedule (12 hours between) worked for me. I'm pretty sure my emotional issues are "feminine" or typical stroke/AVM rupture related. Most people (other patients) I've talked to about Keppra usually become regulated within a few weeks. I don't know many that continue seizures on it. ~seizure free for 2 years~

#6

I potentially had a partial seizure 4yrs after surgery but never got to the bottom of it after several tests and consultation…hope everything works out for your daughter… God bless!

#7

Embolization has chronic effects on bloodflow, this alteres the pressure on normal vessels. I believe she is having some changes. Seizures can appear anytime after 6 months of procedure.The most common effects of Keppra is irritability or mood changes, dizziness or drowsiness, coordination difficulties, lost of appetite.