AVM Group Update
To all of my secret friends and fellow warriors (I say secret not because I hide you but because none of my people “here” know you and I’m the one who is better off for knowing you.) But enough about that.
Yesterday was second opinion day - we drove about 2 1/2 hours to Ann Arbor Michigan (University of Michigan) and had two appointments. First we met with audiologist who ran a very standard hearing test. That test kind of bothers me because it doesn’t take into consideration distortion or pitch or anything like that and every time I put my hearing aids in and turn them on I’m reminded that my left ear is about 1/4 pitch off from my right ear. It came back pretty much the same as the last one - the right ear is “pretty much deaf” (technical term) and the left ear is “pretty much” deaf in the lower frequencies and very deaf on the higher frequencies.
We then went back out to the waiting area because we where 17 minutes before our next appt yet. They called us in so that we were in and all check in and waiting for Dr. H at exactly the appointment time. Never seen a doctor do that before. It was amazing. Watching her work was fascinating - she knew exactly what she was looking for and exactly what she expected.
Here’s essentially what she had to say:
- Hearing - my hearing aids will do what hearing aids will do and there’s nothing that they can do beyond that.
- She said the fact that I’m almost 3 months into two fairly strong anti-migraine meds (Topamax and amitryptiline) and they aren’t working means I need to get in to a specialist who deals exclusively with headaches. After some work this morning, that is scheduled for December 12.
- This morning was my second of what is currently scheduled to be 10 sessions of vestibular therapy. The vestibular therapist is talking about getting their neuro opthomaligist in to see me - it doesn’t sound like that happens all of the time, but I’m good with it. Hopefully this will get my balance back - even some. I don’t need to get to ballet balance ability but something normal would be nice.
- On October 3 (two weeks ago yesterday), we are going back to Ann Arbor to see their voice specialist about my vocal cord paralysis. She couldn’t see the whole thing but I’ve been having more problems with “almost choking” on things that I didn’t used to have.
She said there is nothing that they can do directly to address the noise in my head (she did seem to find the two headaches at the same time concept quite interesting) but she said that if we can control the other things, and do things to reduce stress, combined that should reduce the noise in my head “some.”
Not a guarantee by any means.
So I guess in many ways I could say we got the reports that we expected but not the reports that we had hoped for.
And now how do we reduce stress when:
- I haven’t worked since January and I was struggling to find employment before that.
- My wife is excellent at her job and loves what she does but works in a Neonatal ICU as an RN - a very high stress job - so she often comes home from work not in the mood to interact with anyone.
- Our 26 year old still lives at home, just went back to school full time, is working part time and rents our basement from us.
- Our 17 and 16 year old (Senior and Junior) both are adopted, both struggle with emotional challenges, both struggle with trauma issues, both struggle with, let’s just say they are not easy kids to parent.
- Three dogs - A Maltese who is usually a good dog and then too Yorkie/poodle mixes that my wife fell in life with - that are brother and sister - and are bark monsters.
- My emotional strength and ability to work through hard stuff, well let’s put it this way, if I didn’t have my faith to hang on to, I don’t know if I would have made it.
Our finances are in shambles but I expect to hear on Social Security disability soon which will take that stress away. I don’t know what to do with the rest. Any ideas?
Thanks in advance,