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AVM Survivors Network

Sclerogel -- a new breakthrough?


#1

I saw a post about Sclerogel on a Facebook group, and it seems as though it could be very important to a lot of us:

http://www.1amedical.org/wp-content/uploads/2014/04/EVC-2013-sclerogel-akt.pdf

If you are headed to the doc soon, please ask about this new sclerosant and report back any feedback you get. Thanks!


#2

Wow, thanks for posting this. I will be sure to ask our doctor about this!


#3

Thank you for sharing. I haven't had a check up... don't want to go through another procedure, but I know I probably will have to. It's good to see something new.


#4

Can you share what Facebook group you heard about this in??


#5

It is called "Venous Malformation," mom s.


#6

Thank you. I still can not seem to find this group. Do you think you can post the link to it?? Thanks again.


#7

Here you go, mom s: https://www.facebook.com/groups/253196503124/


#8

Thanks for this share!! I haven't been on here in awhile and will be going to Boston CHildren's with my son for continued treatment! I Will definitely ask about this!! OH! and join the FB group!!! THANKSSSS!


#9

Good morning,

The results shown were amazing! Hope this drug will be able to help members of this group.

Take care,
Debbie


#10

Update on sclero: it is for use with VMs only, not AVMs. But hopefully, something similar can be developed for avms.