In my extended family we’ve had the misfortune of 3 of us requiring a craniotomy for 3 differing conditions, none of us have had the same outcome. Every craniotomy is different. I certainly agree with JD, listen to the advice of your neuro and depending on location and the risks involved, will often depend on the options given.
It sounds to me that your medical team have it all planned out. Sometimes they do a procedure then wait, sometimes months, before doing another procedure, if needed. But it seems your team has the whole process mapped out, that sounds like a holistic, proactive plan and that’s what you want in my opinion. My medicos ‘plan’ (if you can call it a plan’) has been more reactive than proactive ie ‘When something happens we’ll look at it then…’ this has stretched my neurosurgical journey out over years.
How to prepare??? Hmmm, honestly… …I don’t think you can prepare. You can go through it all come out the other side relatively unaffected, but then by the same accord you can out the other side with some life changing effects. Most of us are somewhere in between unaffected and life changing.
My best advice is to be kind to yourself.
Recovery can take time and by time I mean a LONG time.
DO NOT be setting yourself time limits. Your recovery process takes as long as it takes. Somethings may have minimal impact one day, but the following day be a trigger to agony. It truly can be a very fine balancing act some days. For me, some days bright light can be my trigger, some days it can be over exertion, some days it can be diet or fluid and then some days it can be a combination of each and every one of them.
All of your ‘Normal’ limits may change. Neurosurgery is a major assault on the whole body. When your body has reached it’s limits, listen to it. Your body will tell you, but only if you listen. I say this because I didn’t listen. I tried to convince myself I was building stamina by pushing those limits, but I did myself more harm than good, so, don’t be doing that.
We are here if you need to chat.
Merl from the Modsupport Team