Hi I’m new here, I’m 19 years old
I found this website by accident, while researching AVM’s.
I could really use some help from anyone who’s had a foot AVM
The short version is I’ve had issues with my right foot since I was 10 or 11. After seeing multiple doctors, multiple x-rays, physical therapy, 2 MRI’s, and MRA. My podiatric surgeon has found a 3.7 cm by 6 cm mass in my heel, which they thought was a non cancerous hemangioma. Now after the MRA they said it suggests a high-flow AVM and their not sure if it’s cancerous. I’ve now had two doctors say they are not comfortable doing the surgery (a podiatric surgeon, and an interventional radiologist), and i’m waiting to hear back from one more doctor this week.
And basically the only information I have about AVM’s is from doing my own research, the doctors have told me nothing. Their reasoning being that since they aren’t going to do the surgery they don’t want to tell me something and then it be the opposite, which I understand but it’s really starting to get on my nerves. They won’t even say definitively if it’s an AVM.
My questions are: did anyone else go through this uncertainty/not having any answers/doctors not wanting to touch your chart with a ten foot pole?
And if any of you traveled to another hospital/out of state for your surgery do you have any advice/suggestions?
Because I feel like that’s what i’m going to end up doing
Any tips/advice would appreciated
Thanks for reading and sorry for the long post