I had a Hemicolectomy 14 months ago. I also have Myleodysplastic syndrome,which is the bone marrow doesn't make enough red cells,so having more bleeds frightenes the heck out of me,
my Hemaglobin is always roughly between 98 and114.bleeds were putting me way under the transfusion line..
During my hemicolectomy they didn't remove all of the AVMs. I have remaining ones there and I have just had a drop of 10in a FBC .with the red cell count being 11 down to I think it was 103,another bleed now would be transfusion time...My question is how often is it normal for the avms to do their bleeds, after hemicolectomy,s??
it is a real pain having the both conditions,as one thing I cant afford to have is, any reduction in my red cell count, I totally rely on the ones the bone marrow manages to make and it isnt anywhere near enough as it stands..
i hope this all makes sense to anyone reading it but I am kinda desperate for some knowledge on the subject....thanks for being there for me.. thanks for reading I hope you all have a lovely Christmas