Quantcast

AVM Survivors Network

Recommendations regarding east coast hospitals

#1

I have a diagnosis of an AVM of the mandible area. Received diagnosis from local vascular team in 2015. Nothing done at that time per their finding. I feel like a walking time bomb so Iam looking for a second opinion as to whether or not anything can or should be done. I have been feeling ok but I am always concerned about the diagnosis. I have bee looking at John Hopkins in Baltimore or NYU Langone in New York. HAs anyone gone to either of these hospitals and if so your thoughts?

#2

Try birthmark.org for suggestions

#3

Someone had recommended previously this dr
Dr Robert Solomon at Columbia University Hospital is a world renowned neurosurgeon and has operated on more aneurysms and AVMs than any other surgeon in the tri-state area.

1 Like
#4

I know your post is rather dated. Let us know if you have made appts. I wanted to add that some AVM specialists specialize in conditions of the face, they are plastic surgeons by training. Whereas my specialist is a Interventional Radiologist for Extremities, and some pts. need a neurosurgeon. When on birthmark.org, look for Ambassador Kay Kay. She has been treated in NYC several times. Or ask Dr. LINDA. Is your AVM actually in the bone? I send my best wishes.