A bit of a rant and worry:
I somehow triggered the AVM in my right foot in August last year. I was signed off work as I was in severe pain and struggling to walk. As I was still on probation, work let me go at the end, and I have been unemployed since. And with the pain getting worse in my foot, I have been unable to help around the house (plus, it is coming up to the year mark for trigging the AVM). One year of constant pain - and unable to take pain relief is really dragging me down right now.
I was finally diagnosed in Feb/April this year and had my first round of treatment in May (although it hasn’t worked). I find the pain and swelling are getting worse and am really worried that treatment won’t work. Plus, with COVID delays, I don’t know when I will get to see the pain clinic to try and help on that front.
The worst part is I can do so little around the home. I am not earning, and I can’t even help with chores because it is so painful to walk most days. And I know it is putting a real burden on the rest of the family. I just feel really low at the moment. I am struggling because I don’t think they fully understand - they are all used to things that either get better on their own or after a medical procedure - it has been a real struggle with something that day in and day out is painful and just won’t improve.
I hate to be such a drag on everyone at home. I just wish things would get better and treatment will work. But if it doesn’t and I am not eligible for the hospital’s experimental treatment, I don’t know where I go from there? I am scared that it might come to amputation, and then I will be an even bigger drain on the family while I learn to adapt.
Thank you for reading - I just need somewhere to talk where people understand what I am going through and get these issues.