My 11 years old son collapsed in August 2017 and we found out at that point that he had a AVM in the left part of his brain. It’s a grade 3 with one entry and one exit located close to/or in the sensorimotor.
He was speechless for 5 days and paralyzed on his right side for a month. After 46 days in the hospital and intensive rehab, is doing a lot better and just need to walk with a brace because he right feet is not totally back to normal.
Things drag long but in January 2018 he had a second angiogram and then the neurosurgeon ask for a fonctionnal MRI which was done in March.
We meet an embolization specialist last week and that will be an option for my son. Although, we find that the chance of success of that technic alone seems limited. She’s didn’t seem keen on cimbining with radiotherapy since he’s young.
We will meet the neurosurgeon tomorrow to discuss the possibility of a craniotomy to cure him. If it’s possible, we will have to choose between the options or even do both (embolization to help the surgery).
We know that every case is different but we would like to know if there’s some questions you asked or you wish you asked about craniotomy that we should know about to be able to have a proper discussion and then make the best decision for or son.
Also, we would like to know about your kids recovery from either embolization or craniotomy to have a certain idea on what to except, knowing again that each person reacts differently.
Thanks for you help