AVM Survivors Network

Pulsatile Tinnitus-Does it go away?

Hi, I wasn’t sure what category to put this under
Anyways, my question is for anyone who had pulsatile tinnitus or just plain tinnitus because of their AVM- did it go away once your AVM was treated? Or do you still deal with it?

I suffered with pulsatile tinnitus for 5 years and it turned out to be the first sign that I had an AVM. It continued through a bleed and disappeared completely after I received a catheter embolization with coils. It has not returned since the surgery, thank goodness.

I had wht was or is callled a bruit, the sound of blood rushing through the AVM. It was, along with headaches and spots in my vision, one of the first symptoms. It was contnuous. I was only 8: i am now 67, my AVM was removed by craniotomy. I have never heard that bruit noise again. I am not sure if that is the same as tinnitus.

I have a bruit in my head and I have had 3 embolizations waiting for my craniotomy. I will let you know :slightly_smiling_face:

I definitely had pulsatile tinnitus pre embolisation. Post embolisation, the PT, the bruit, the whoosh has gone, though I can hear a regular heartbeat, sometimes.

Immediately post op, the heartbeat was loud – just as loud, if not louder than the PT – but much less now.

I do have regular tinnitus, anyway and that is the same if not louder post op.

Thanks for the replies. :slight_smile:
I haven’t been diagnosed with a brain AVM (have appointments with neuro and all that jazz coming up though), but given that I have tinnitus, sometimes pulsatile tinnitus, hypercusis, and chronic pain from an injury to the back of the head/neck I figure the odds are leaning towards an AVM. Though I do realize it could be any number of other weird medical conditions. I thought I might as well ask you guys so I could have an idea of how things might go (if it is an AVM)
Anyways thanks again :slight_smile: