My mom was just diagnosed with a pulmonary AVM. She was told by pulmonologist in Hartford, CT that it needs to be coiled as soon as possible. I am in the Boston area and she would rather have it treated here. Wondering if anyone has recommendations for docs who perform this type of procedure?
Hi Stephanie. I did a search on here for you…http://www.avmsurvivors.org/main/search/search?q=Pulmonary
Massachusetts General Hospital is well known for being able to treat brain AVMs. It is my guess that they would know someone who could treat pulmonary AVMs. My friend Lousia…
http://www.avmsurvivors.org/profile/LouisaCicillini
has the number of her surgeon there. You should contact her. Also, would like to invite you to an AVM get together in your area…http://www.avmsurvivors.org/events/new-england-northeast-avm-luncheon