I’m so sick and tired of living with an AVM
I decided to remove it after 2 years of doctors treating me like my AVM is “simple”
Long story short after three embolizations I thought I was healed
Lol think again
Facfs about AVMs
AVM causes brain irritation
Seizures are caused by brain irritation
Embolization and Gamma Knife is only for very small AVMs do NOT believe this advice to just “monitor it” if you don’t think the team of doctors are world class AVMs are pretty rare
Finding a good team of doctors is VERY difficult
You need a TEAM if you want success
Grand mal seizure affects all brain.
AVMs that change blood flow in the brain it seems that left temporal lobe is associated with seizures. And that is affected by blood flow of the malformation
Southern California they like embolization
Arizona (Barrow) they like surgery
It seems embolization is only for very small AVMs
According to ARUBA study surgery is a solution
According to ARUGA study your chance of hemorrhage or seizure INCREASES to 14% from 2%.
You tell that to doctors they don’t want to “talk about it”
It seems like the only solution is remove AVM according to ARUBA study
What happened to me
I had a massive seizure and they put me a breathing tube and they told me I will become a Keppra for 3 months
In my EGG they said left temporal lobe was also causing seizures
I got so sick and tired of begging doctors in Southern California I just asked Barrow if they can take the case.
So Dr Lawton will remove the AVM
He learned from Dr Spetzler himself
I have prayed to God that this is the beginning of the end!!!