@DickD your right - Omg I wonder if its the same thing I was misdiagnosed with. I went into the hospital for an appointment with the neurosurgeons registrar a couple weeks after I lost my hair for a follow up appointment. I had already been told by my neuro-vascular nurse when I called her about it that it was due to overradiation. When the registrar saw my head she immediatly insisted it’s not due to radiation, that there is no way that is possible. She told me the only cause is that during the embolisation they must have cut off the blood supply to my scalp. She said my hair is most unlikely to return and in some cases the scalp eventually turns black. She talked with such confidence like she knew for sure shes 100% right and was totally blunt. I can’t tell you how I felt other than deep numbness in total shock. Thankgoodness as soon as I went downstairs to do an MRI scan, the neuro-radiologist who id met before rushed to me having just called the registrar to see how I’m doing and told me its completely wrong and my hairloss is due to overradiation and has good chances of growing back. I am so thankful the neuro-radiologist rushed to correct this or I think I’d would have reached big time breaking down point. I am annoyed to say the least though that the registrar who messed up never apologised or apeared to feel bad - she just confirmed incorrect diagnosis when telling me my MRI results the following day. It shocks me that she wasn’t phased about such a huge misdiagnosis.
Omg I agree people just don’t get how hard it is! There is such a pressure to be “brave” about it but its a differant story when you have to deal with people staring at you and treating you differantly. I don’t see it as superficial at all because to be honest I’m the same. I’ve always taken pride in my appearance too and I think I didn’t really appreciate how differant it is on the other side. Trying not to sound vain but I felt I went from being generally seen as good looking with people being really nice to a half-bald girl people don’t know how to respond to. I realised how differantly you get treated depending on your apearance. I hate how people shrug it off or say “atleast you can wear a wig”. Like to me wearing a wig feels like wearing a mask, I dont want to have to cover up and its uncomfortable and frankly very hot on the head.
I also take biotin daily! And thankful to say my hair is finally grown even enough that no one would guess my hair isn’t short by choice. Finally don’t have random people calling out “cool hair style” or “why shave half your hair?” - just feels hella embarassing and intrustive.
If you feel comfortable with it, I’d love to see photos of your hair now its grown out?
Thankyou so much for sharing your story and pics!