Finished my 3 days treatment of cyber knife radiation. I did the treatments June 1st 2016 - June 3rd 2016. Each treatment lasting about 30 min. You lay on the table with the plastic mesh mask and the robot comes out from behind you and hits the area of the brain/AVM at all different angles.
I will remain on the steroid until June 21st. I have begun the tapering off of the steroid. The main purpose of it was to reduce brain swelling. Still on my Keppra seizure meds as well.
Here are my current side effects:
Still don't feel 100% but it could be worse. I have some headaches and a "pressure" like feeling around my head. I have big problems right now with extreme ear ringing and it almost always sounds like its raining outside even when its not (I know this has something to do with hearing my blood). I experience some vertigo like symptoms. During the treatments I was falling asleep hours afterwards and staying in a deep sleep, just knocked out. My appetite actually went down despite the steroids. During the treatments I was also smelling a burning metal type of smell. I still feel light headed at times and slightly disoriented. Almost like I can't focus. Hoping all off these side effects go away over the next few weeks.
Nothing to do now but wait for a year for an MRI to see how much has closed off, but they said they probably wont see obliteration until around 18 months after radiation.