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Post Angiogram, Waiting for Results, Seattle Area


#1

Hello All,
I’m Julianna and am 27 and currently live near Joint Base Lewis-McChord in Washington state with my husband and son. I’ve experienced AVM-like symptoms throughout my life but remember a horrific migraine that put me in bed for 48 hours and an instance of facial paralysis on my left side as well as “ice pick” headaches (as I’ve read them termed here.) I wasn’t able to put the pieces together until delivering our son in January; I experienced a seizure before birth and a second one after he was born. He had no complications and was/still is very healthy. I had my first angiogram two weeks ago today and am awaiting the results for treatment. I was wondering if anyone’s located near the Seattle area? I’d love to learn more about AVMs (mine is deep in the right side of my brain) in general and meet with anyone who can understand how this impacts daily life. Depression can be a key player and my husband sometimes has a difficult time understanding all the AVM encompasses and the difficult days I can have. I bled out twice after the angiogram as well and have a large, hard lump at the incision site. Is this a fairly common thing? I’m looking forward to confirming treatment as well as building a support community with you all, thanks so much.