My son was 20 when his AVM ruptured. His only option for treatment was Cyberknife Radiation which can take up to 3 years (or longer) to be fully efficacious. In a few days, we’ll be at the 3 year anniversary and he’ll have the next MRI this summer to see if it is obliterated. I wrote this poem during this period of waiting and thought, perhaps, many of you could relate. I wish us all comfort during these most trying times of parenthood. Be well, Kelly
Blueprint of the Waiting Room
I’ve been remodeling my brain constructing a new wing for worry
my son’s snarled nest of unpredictable tangles demands a large parcel of real estate in both our skulls
while radiation hopes to choke blood vessel by errant blood vessel my maternal hemispheres expand two stories spiral staircased floor-to-ceiling medical library with a sliding ladder on rails
soundproof walls absorb anguish & night terrors no space for windows light can enter only through the keyhole in the massive oak door its key too heavy to carry
Your poem captures the waiting game so well. It’s bad enough having an AVM but it must be worse having a child with one. All the very best for the scan.
Jonny
Thank you very much for reading and your kind words. I’m sorry for the reason you can relate to this but also hope it makes you feel less alone. All the best to you and yours.
Thank you for the kind words and the read. I’m so sorry you are also on this journey. May you find comfort wherever you can. Wishing your family the very best.