If anyone knows a good neurologist who is willing to read my letter, please send him! Hoping for a chance for my wife.
Allow me to introduce myself: I am Horia Dascal, in Romania,
and I dare desperate appeal to you, hoping you can help me. It is about my wife, Mihaela, 36 years old. She was diagnosed with left temporal lobe AVM, embolization and surgery in Oct. 2009 in Helsinki, by Professor Yuha Hernesniemi. During surgery there was a massive cerebral hemorrhage. Damage results were: total and permanent blindness of left eye, and an atypical mydriasis, which occurs only in the presence of artificial light.
After a very difficult recovery for 6 months, followed a period of equilibrium, with a somewhat normal life, considering the sequelae.
I'm trying to say what is wrong with my wife now : 4 weeks ago, so-called normality, which is already installed, it crashed. It installed a blurring of vision (blurred image, slightly trembling, the glows moving in the visual field, and difficult and uncertain focusing of the image, all, as well as head movement, are accompanied by nausea and constant flurry - I tried to describe, as I could, how my wife sees ), accompanied by a great dizziness, as in the period after surgery, as she would be under the influence of drugs. This condition is unchanged since now.
My wife did an MRI, a detailed eye exam, EEG, lumbar puncture, detailed examination of the inner ear. All showed no pathological changes.
I asked the opinion of a neurologist, in Bucharest. First, he said they have no experience in such cases. The neurologist and the ophthalmologist said they can only assumes that there are problems with blood microcirculation, corresponding to the optic nerve, postchiasmatica area, which, from their point of view, it is practically irreversible.
Do you think these symptoms are indeed irreversible, as was told in our country? Do you think there is no treatment to improve the situation of my wife?
I expect your opinion hopeful, because is the only thing that I can try, hoping that I could help her.
Forgive me once again, that I dared to write you, but pain and inability to help my wife determined me do that. She once went through hell and now she repeats it, worse than the first time.
With gratitude, sincerely yours
Horia Dascal (firstname.lastname@example.org)
PS: I can send to you anytime, if necessary, MRI, and exam. fundus.''