Quantcast

AVM Survivors Network

Pelvic avm


#21

I had the glue used to embolize a pelvic AVM in September 2015. The AVM and aneurysm it had caused were said to be shut off. I am getting my first CT scan since just after the procedure this week. I hope it really did work. I didn’t realize that the AVM could start “flowing” again as I am now reading about in this discussion.


#22

Hi
Can I ask how many did you do? Are you feeling better? Did you have problem with sitting after using glue and coil?

Thank you for sharing.


#23

How do you cope with the pain? I cant sit, walk or lay on the bed now. I really fed up with this disease.
It is inspiring to see you become surgical tech. Did you try physio after the embolization?
I am ashamed of my family to complain about the pain because I had it for 21 years, but Im really tired and wish I could do something.