It’s been a long time since I’ve been here and I forgot how much I missed you all! Thanks for reading (and perhaps responding to) this post.
I had a PAVM bleed/rupture on Sunday and was admitted to the ICU. I have more than 100 PAVMs … and the problem is that I stopped active bleeding before all the scans were preformed and they don’t know which AVM was the culprit. They drained all the blood from my lungs, preformed two embolizations (that makes 41 to date) on the biggest AVMs and told me that there’s no way to know if they got the bleeder.
They say that performing embolizations on 60-90 more AVMs is just not a viable option right now, and I understand that. They also said that more bleeding is unavoidable and the best thing I can do is have a stong emergency plan in place.
I’m back home this evening with minor restrictions and cough suppressant. I have to admit that I’m a tad frustrated and nervous … and I’m wondering if anyone else has heard or, or been through, a similar situation.
As always, thanks for your ear and support!