Does anyone else have intermittent pain at the site of their AVM? Sometimes the pain is immobilizing and I can't walk upright or at all (due the the place of mine). I talked to a doctor who said that it was probably going through a natural emobilization process. Has anyone else heard of this?
It does, in fact, get smaller from time to time (it was the size of a softball, now between a softball and a golf ball). But, then, if it is going through a clotting and breaking down cycle, even a natural one shouldn't blood clots be a concern? When it goes through a painful phase, it feels ultra swollen but the skin does not become discolored. Then, suddenly, it will stop hurting and I won't feel a thing until it starts to rage again. It's the strangest thing.