Hello everyone - here is our story,
After epileptic seizure in 2015, my wife was diagnosed with left occipital AVM (grade 3).
After her diagnose she was treated in Bosnia and Herzegovina (where we live) and underwent 3 embolizations, but her AVM wasn’t cured and she AVM had developed new feeders after last embolization making it even more complicated to treat.
At that point we were told that they cannot go further with embolization and that her only option is surgery. Considering the location and possible risks she decided not to take her chances with surgery.
In years to come, her epilepsy was out of control even with large dose of antiepileptics, so we started searching for cure on our own.
At the beginning of 2020, I found out about this forum and started reading your stories and experiences. After some time, we found few stories/examples here of a successful curative treatment only by embolization by prof. Rene Chapot (Essen, Germany). We got in touch with him, and he explained to us that curative embolization is possible in her case.
This April, after only one treatment in Essen, my wife’s AVM is completely cured/oblitared with no deficits at all - literally nothing (which is extraordinary).
Thank you avmsurvivors.org for helping us find prof. Chapot!!!