Time for an update and a question…
Update, yesterday it was 8 weeks since my last treatment. How’s the best way to describe things? Well, let’s just say that pretty much everything is back to relatively close to where we expect it’s possible for it to be.
In other words, any progress that we’ll see going forward is going to be slow and progress by inches not dramatic progress. With what looks like one possible exception. Sleep and fatigue…
I have been so unbelievably fatigued since these last treatments in the middle of June. It’s not uncommon for me to fall asleep 6 to 8 to 10 times a day - and quite often it’s in the middle of doing something - like making lunch or typing or channel surfing. It is really slowing me down in terms of what I can do and how much I can get done. In addition to that, I seem to develop a sleep pattern of 3 to 4 hours, get up and take more headache meds and then toss and turn for 2 to 3 hours and by 5 or 6 am I’m awake (but tired) and I do not start the day well rested…
I’m working with the sleep center at “my” hospital and one of the things they are looking at is not only obstructive sleep apnea (I’m going on 8 to 9 years of that) but also central sleep apnea - like maybe something with the embolizations, the radiation, the Onyx, something messed with the central sleep control in my head and that’s why this is all happening.
Have any of you had anything like that? Heard of anything like that? Where the treatment made sleep issues worse?
Or any other ideas?
Thanks in advance,
P.S. I actually made it through this entire message without falling asleeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeeee. Shoot!