Only 3 years old

My son who is 3 years old was recently diagnosed with AVM on 12/15/11. We went into the hospital because he feel down, hit his head and was complaining about headaches. The headaches would come and go various times of the day even when he tried to sleep. The first visit said he had a concussion but since we insisted they do a CT Scan. The scan found a moderately hyperdense lesion on the left thalamus with a left ambient cistern. They discharged us and told us to follow up with pediatrician and take MRI. Spent the day looking for a place to do the MRI in a 3 year old. Took him to see the pediatrician and they sent him to children’s hospital. It was then he took sedated MRI & MRA. They found a large arteriovenous malformation in the left hemisphere centered in the left basal ganglia, posterior limb of the left internal capsule and left thalamus. They said this finding was found accidentally. He still has headaches that come and go. We are waiting for the peds nerosurgeon to review everything.

Update 1/2012
nerosurgeon told use that we cannot do anything because of the size, location and his age. Headaches are not not that bad with medications and and he does fall more but we are going to stay positive that he doesn’t have a bleed anytime soon. His doctors would like his head to grown more.

SIBC...There is a group of parents who's children have AVM's. You could be very helpful to provide information..

Stay strong...we all are here for you!

SIDC, I meant to say that group will be very helpful to provide YOU with information.

Thanks, I will look now. Finding this site is a blessing.

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