Hi again-yes I know I've been posting less and less. Why are there no organizations specifically for AVM? This needs to be done. If someone won't...I might have to.

Jill, you can look up the Aneurysm and AVM Foundation (TAAF), The Ryland Project, and the Vascular Birthmark Foundation (VBF), as well as organizations the raise money for research founded by our own members, Kelleigh's Cause and the Butterfly AVM Charity in the UK. There is definitely room for more, though...

Thanks for letting me know! There should definitely be an official organization for AVM. Just because it's rare doesn't mean it can be ignored.