Nikki Lilly

I don’t know how many people are already aware of Nikki and her YouTube vlogs but this brave 12-year-old was on BBC TV this morning.

I thought this video might be helpful for people – Nikki’s explanation of her AVM – and her positive outlook on life is an inspiration for everyone.

Nikki has a facial AVM.

1 Like

Thanks so much, my 11 year old son and I just watched this and a couple of her other videos. She is certainly an incredible young lady, wow.

1 Like

My AVM sits on top of my speech-motor center of my brain, and I had one blood stroke 3 years ago now at age 67. It took me quite a while to walk again after that stroke. I agree with you–Nikki is inspiring. Thanks for responding to me.


An interesting update on Nikki and work at UCL & GOSH. Anyone heard of gene therapy for AVMs?