I was recently diagnosed with a spinal AVM in T8 - T12. They also mentioned AV Fistula? This is all very new to me. So I would appreciate any guidance that could be offered.
Basically I woke up one night with complete numbness in my saddle area. I decided to wait and see what would happen. Two hours later the numbness had spread and was worse. I decided to go to the ER, where they ended up admitting me for several days. Multiple MRIs, an angiogram and several appointments later - here I am.
The neurologist advised me of the risk of hemorrhage and stroke then told me he wanted to follow up with me in three months. I’ve never had anything like this before and so I couldn’t think of many questions at the time of our appointment. A lot of what I have read online indicates that eventually most people have some sort of treatment. Is this really the case? Also, what are symptoms that people have experienced? I havent really encountered the “pins and needles” sensation much, but I do suffer from back pain and have most of my life. I have also noticed this really weird pulsing sensation that occurs in my spine when I move to fast or sit down. I can feel my heart beat traveling up my spine and ultimately stops in my cervical area. The pulse is really strong and often painful. Could AVM cause this?
I know I am all over the place, so I apologize. I will talk to the neurologist the next time I see him and make a list of questions. But, I was hoping to get some responses with people’s own experiences in the mean time.