My name is Anna. I had my first hemmorage 5 years ago when I was 47 and a second bleed this past April. The AVM location is in the right ventricule of my brain, so I had terrible headaches but no neurological deficits from the bleeding.
I have been told that surgery is the only way to remove this AVM so my plan is to wait and if it bleeds a third time, I will opt for surgical removal.
I have been living with occasional headaches and fear that it will bleed again but I am able to go about my daily life without obsessing over it. My headaches took a long time to resolve but in time, I felt about 75% back to my self. Fatigue and headaches are still something I deal with occasionally, but it is possible to adjust one’s mindset and continue enjoying most everything even with the AVM still present.
I hope you’re able to resolve your condition, but if you have to adjust to life with it, it is possible.
Best of luck to you.