Thankyou lots! I’m glad that this has put things in life into perspective. Once your all treated, you’ll move on with life and this new look at the world will stay with you - will never take life for granted. As much as no one would sign up to have an AVM, I think we are gifted in a way, so many people waste their whole lives coasting and not really appreciating life where as we will never do that.
Thankyou! I’m feeling pretty chilled for the angio just hoping that I’ll be low risk for my final treatment/s
Hmm that is odd, hopefully a false alarm or if it’s epileptic I’m sure they will be able to control it with antiseizure meds. If Lamotrigine is an option that would work - I would recommend asking them about it. I have no side effects with it and my medic friend (who also has an AVM) also recommended it to me and uses it without side effects - though I know everyone is differant / reacts differently.
I will be thinking of you on thursday, please do let us know how you get on!