Hi. I have an AVM in my left rear. It was misdiagnosed for 12 years and was huge by the time it was identified (2.5 x 4.5 x 6.5 inches). I even had a doctor tell me the pain was all in my head – I’d love to show it to him now. ha.
At any rate, I’ve had 45 surgeries and am schedules for 2 more this month. Of course, ethanol embolization leaves destruction in it’s wake. Has anyone found anything that helps with internal scar tissue build-up? My left side stays swollen 2-3 inches. Some of this is due to a restructuring of the muscle… some, I am sure, is scar tissue. Not sure what I can really do about it. Since I sit funny, my back and neck go out… so I see the chiropractor a lot.
Overall, I am doing okay. I am just tired… always tired. Thankful it is not worse than it is. Insurance is horrid though. $5000+ out of pocket each surgery. Goodbye dream of house solar system