Hello everyone! I’m excited to find this group and get to know some other people who are struggling with AVMs. I was just recently diagnosed with one in my foot- I think this must be pretty unusual, as I can’t find anything about foot AVMs online! I am in a lot of pain right now and can’t stand or sit up hardly at all without the vessels in my foot swelling like crazy. The problem has progressed quite rapidly since I got surgery in my foot about a year ago, and especially in the last month.
Aside from the AVM, I live in Oregon and love to write and play the piano in my free time. I am also diagnosed with Hypermobile EDS, Mast Cell Activation Disorder, and POTs syndrome. I’m not excited about the diagnosis but I am excited to learn more and hopefully get answers soon.