Hello I’m new, I was diagnosed with an AVM in the right thalamus 2.5 cm, back in March this year, I’m 38 years old. My issues started over the last year, where I’ve been feeling more tired in the head and started getting really bad heachaches. Mainly random headaches on right side of head feeling like stabbing knives. Things got worse in March this year, I felt like I was going to blackout at work. A week later I got double vision.
Went first to see an optometrist about the double vision, confirmed I had double vision but nothing was wrong with my eyes and was referred to an eye specialist. That night I woke up with a bad headache , like my brain was breaking through my skull. The headache lasted 4 hours then the stabbing knives headaches came after lasting upto a half hour.
I went to the er and had two CT scans done and was told I have what’s called an AVM which I never heard of before. I was transferred to another hospital for more testing to see if it was bleeding. After all the testing, I was told I had a bruised hematoma and was told there was no bleeding at the time. I was told surgery wasn’t really an option due to the location. Since I was still able to walk and talk I was discharged and sent home and referred to gamma knife in Toronto. I’m still experiencing pressure headaches for several days at random with the feeling of being hit over the head, which occurs on weekly basis.
My gamma knife radiation is scheduled for September.