I am currently being tested for an AVF in my thoracic spine. Am I in the right group? I sure hope so as I am scared out of my mind when thinking about all this. I have a CT Myelogram scheduled for December 5th. Anyone have one of those? Words of wisdom?
You are in the right place! Welcome to the AVM family. You will definately find support and encouragement. Search around I’m sure there is someone who knows your type of avm. Post a blog or on the message board and they will find you! Good luck in December!
You’re in the right place, Marci. Welcome to our family. I know that you are probably a wreck right now…please know that you are not alone. We are here to support you and answer any questions that we can.
Welcome to the group Marci!
I hope your Myelogram goes well next week — looked it up on wikipedia for you if you haven’t already done so yourself by now: http://en.wikipedia.org/wiki/Myelography
My AVM is in the middle of my head and I’m awaiting a date for another test before the (first) embolisation. I’m 41 and live in Holland.
Hugs from Kerstin!