Hello, I am new here. My name is Lori. I am 39 next month. I am a mother to three boys ages 9, 7, and 4. I never so much as heard as a malformation my entire life until this past January. I had a surprise pregnancy. This time I was carrying a girl and I felt "different" from the start. A friend noticed a bump on my face (lower left mandible between chin and ear). I began with a trip to an ENT. This followed with trips to a maxiofacial surgeon, radiologists (for ultrasounds), more ENT's, a vascular surgeon and then another vascular surgeon who specializes in vascular birthmarks of the head and neck. I live in North New Jersey and always thought the NYC area was loaded with some of the best doctors in the world. Well, as it turns out, most of those "best doctors" take NO in network health insurance. How lucky that I currently have no out of network. I went last week to Dr. Gregory Levitin. He feels I have a lymphatic malformation, possibly part venous. As it has been explained to me, my risks are nerve damage and the threat of this growing back, more than double. Yet, I've also been told if I do nothing at all, it can double anyway. As it stands right now, it's not SO obvious and I just cannot decide what to do. I am a member of many forums on Facebook (some of you may know me from there) and I fall apart into pieces when I see all of the mixed opinions about sclerotherapy vs. excision. I just want to get to a place where I truly believe what I'm choosing is the best option for me. I'm scaling the globe for someone who has a malformation similar to mine and better yet, who has overcome it. Even better if this person is a former patient of Dr. Levitin. Thanks for taking the time to read this.