Hi everyone! My daughter just was diagnosed with AVM, we are waiting for her Angiogram to be scheduled to measure to size. But of course someone in a comfy chair at the insurance company has decided because the facility isnt in network she needs to be transferred to care of a provider that is not familiar with AVM. Meanwhile I have not explained to her how serious this can be. How have you explained it to your child? Also what have you done to get the school to completely understand the risks?