Did you find a neurologist your happy with? I’ve had some pretty serious medical issues over the years, and one thing I do when I’m looking is pretty much interrogate every doctor I like in case they have recommendation. By doing that, I’ve found a couple of specialists “through the grapevine” who are phenomenal. Other times, no luck. I’ve been looking for a good primary for five years. I also tell other doctors about anyone I’m really impressed with - although that did backfire once when my kid’s primary, a PA, was was hired into my endocrinologist’s practice.
Also, I just wanted to give a shout out to Mayo since you’re in Minnesota. I took my mom up there when she was diagnosed with a very rare cancer, and I can’t tell you how impressed I was with both the facility and their team approach. I would definitely consider consulting with them even if they don’t become your regular doctors.