Need some help

Hi everyone!
As all of you know my son Nico has an AVM. Every once in awhille he says he has a headache. Of course when he says that my heart stops and I have to remind myself to breathe. These headaches come and go… I told the doctors but they don’t seem to concerned about them. Plus its difficult because he struggles with the words to describe them. Today it seems we had a breakthrough he says it tingles like when his foot is asleep. Has anyone else had this?

My headaches mostly feel like either presure building up or a vice squeezing my head. Maybe it’s different with children?