I am a 40 year old man who was diagnosed with a Right Parietal Lobe Arteriovenous Malformation measuring 1.8 x 1.9 x 2.7 cm on December 20th, 2014.
(Hence the User ID AVM122014).
Below is the history of how my symptoms first appeared and the steps I took to get to my diagnosis.
As things stand right now my Neurosurgeon is recommending surgical resection via craniotomy. I have some major concerns about this which I will post under another thread, I just wanted to get my symptoms and history out there for others to learn from.
My AVM Diagnosis / Event History
1.Symptoms first appeared Wednesday, November 12th
a.Head pressure, right eye not open as much as left eye
b.Seemed to get worse on Thursday November 13th and Friday November 14th
2.Initial consultation with my Primary Care GP Doctor on Saturday, November 15th
a.Initial diagnosis was possibly a mild case of Bell’s Palsy
b.Blood work was performed at, results showed elevated levels of inflamation
3.Symptoms increased week of November 16th
a.Wednesday 11/19 while traveling for business I contacted my Primary Care GP Doctor’s office and he called in a prescription for Cipro re: possible sinus infection
b.Friday 11/20 follow up visit with Primary Care GP Doctor
i.Referral to Ophthalmologist
1.Initial impression – possible internal Shingles outbreak on optic nerve.
2.Given samples and prescription for Lotemax
ii.Prescription written CT scan of sinuses
c.Symptoms increased – right pupil was not dilated as much as left
4.CT Scan of Sinuses performed on 11/24
5.Symptoms increased the balance of that week, particularly on Thanksgiving 11/27 severe pressure in right temple, could feel vein in right temple pulsing by touch
6.Friday November 28th – follow up visit with Ophthalmologist for a visual acuity test – passed
7.Monday December 1st – visit with my Dentist to see if possible oral infection could be cause of discomfort, believed there was small chance that it could have something to do with upper right wisdom tooth
8.Week of December 7th
a.Follow up appointment with my Primary Care GP Doctor mid-week as I was still having discomfort and eye issues
i.Prescription written for Brain MRI, additional Blood Work, and Neurological Consultation
9.Week of December 14th
a.Blood work performed on Thursday December 18th – testing for specific viral infections (Shingles)
b.Brain MRI performed on Friday December 19th
c.Results were picked up on Saturday December 20th showing AVM with prior hemorrhage
d.Brought results to my Primary Care GP Doctor, script written for Neurosurgical Consultation with a local Neurological Surgery Medical team.
i.Made the decision to not deal with regional based hospital, so I went to what I found to be the #9 ranked hospital in the country for Neurosurgery.
10.Week of December 21st
a.Monday December 22nd, worked on getting appointment with Neurosurgeon
b.Tuesday December 23rd, appointment made with Neurosurgeon for Monday December 29th
c.Friday December 26th - MRA performed in preparation for appointment with Neurosurgeon
11.Week of December 28th
a.Monday December 29th, Initial Consultation with Neurosurgeon
b.Wednesday December 31st, Cerebral Angiogram procedure performed, findings support what was detected on MRI and MRA : Right parietal lobe Arteriovenous Malformation measuring 1.8 x 1.9 x 2.7 cm
12.Week of January 12th
a.Monday January 12th, Follow up Consultation with Neurosurgeon, recommendation is surgical resection via craniotomy.
- Non Specific Pain behind and around right eye, right temple is very sore as is right eye. Severe scalp sensitivity on right side of head – brushing my hair is painful / discomfort
- Blurred / week vision in right eye, Eye twitching weeks ago during event
- Right eye not open all the way still
- Intermittent head aches and pressure - Taking Advil, Xanax also seems to provide some level of relief with head pressure / discomfort
- Pressure still behind right eye