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AVM Survivors Network

My Anniversary


#1

Hey,

I just realised that it is exactly a year on Saturday that I joined the AVM Survivors community. It has been a very interesting journey over that year and I want to say it has been great to share some time with people in this community. Thank you for having me. Thank you for supporting me in the more difficult times. I still have the greatest respect for everyone who has gone through a bleed. I’ve only walked so far along this journey, compared with some.

I have tried to give back to the community just as much as I have received. Sometimes I’m sure I overdo it but please forgive me!

My journey:

and

I have to say that reflecting on how I am this week, I am much better than I have been since the beginning of the year. I still have days when my head feels odd but perhaps as many or more when it feels just fine. I’m definitely better than I was after my embolisation in April, than after my angiogram in May, or for that matter than I felt last month.

I hope others get encouragement from my story and it is great to be part of this community!

Lots of love all,

Richard


Almost nowhere to go...!
Only you know
Recently diagnosed with Dural AVM, now what?
#2

Hi Richard, you and I are both fortunate that our AVM’s didn’t bleed. My story is long so read it in my profile if you’re bored.

The short version: I was in a head-on collision resulting in much head and brain trauma. After numerous tests and an MRI the doctors said all is good.

I wanted a second opinion for no other reason than being through. These doctors found the AVM. First ones missed it. It was asymptomatic. So I would not have known I had one until it hemorrhaged. Lucky me!

I had surgery June of 1993 and made a full recovery. Not sure I would do that again.

I wish this forum was available when I was euduring the AVM journey. I’m just happy now to be able to help others anticipating their futures after AVM treatment.

Stay strong. And reach out if you need to.

Bill


#3

Bill, thanks. I :heart:ed your original post yesterday. You encouraged me so much with that original post, it deserved a
:heart:, even a year later! Thanks!

Richard


#4

I just wanted to record a little success… I signed myself up for a local gym a couple of weeks ago. First time in 13 years, I’d say, that I’ve been a member at a gym. I’ve only been attending a week and a half but I’ve finished this evening’s sensible 50s+ fat burn to cardio range CV workout and feel fantastic.

Head is still a bit funny some days and I’m starting to think I might need to go and see the doc but doing a bit of good, sensible activity feels good just now. Thought I’d share some good feeling…

Lots of love to all,

Richard