Hi all, Just seeing if anyone ever still had issues 7 months in? I know it’s early days and every case is different but I’m still struggling with my head… I had a rebleed in June 2017 in my cerebellum and it has still not stabilised. It has got much better but it’s not gone away. It’s like my brain is constantly moving/ vibrating /shaking/juddering not sure how to explain the sensation. Has anyone else experienced this and I’m guessing it does go away as I have never read that anyone has this… I also have funky vision, poor balance and having to re learn to walk. Which is all improving slowly but boy am I having to put in the hours! It’s hard and slow but I’m thankful that it’s all moving in the right direction.
I’ve still got a bit of a pulse going on on the back of my head somewhere, I think. Can’t feel it on the outside but it feels like your constant moving feeling, I think.
I’m going to get it checked out but I’m having to wait to March.
I’ve not had a bleed so I’m sure I’m much better off than you, but I hope it helps not to be completely alone!
I think you had gamma knife, so I think it takes ages for that to have its full effect. I hope you just need time to get better.
I think it can take up to five years for gamma to take full effect. I’m hoping for a change soon from the bleed as it’s been 7 months since the re bleed. I’m sure it will happen. It’s just a long slow journey in the meantime… All the best for your appointment, I hope they have some advice for your sensation, fingers crossd good luck.
good luck.