Hi Everyone, My wife Mabel has an AVM in her left temporal lobe that effects her right arm and hand by numbness and tingling. It also moves up to her right side of her face. She is taking Vimpat, Keppra & Onfi. 400mg, 4000mg,and 25mg daily and still once in a while will get seizures. Is anyone experiencing these kind of issues? And if so, what meds are you taking? I would like maybe to change medications that maybe will work better. Thanks in advance.
You may wish to join this sub-group…http://www.avmsurvivors.org/group/avm-with-seizures-epilepsy
Is your wife’s doctor an epileptologist? Not all neurologists are seizure specialists even though they claim to be. http://www.epilepsy.com/newsletter/jan13/epileptologist