It has been a long time since I’ve logged in. I read your story today and needed to reply.
My AVM rupture was 10 years ago (17 Dec 2008) when this site was first launched. I was 34. Woke at 3am with THE headache, managed to call a friend who arrived minutes before my stroke, emergency op to remove AVM within hours. Was very lucky. Only deficits are sensitisation on left side, loss of left peripheral, fatigue, low resilience to noisy, loud, busy situations. But I was very lucky…
And I didn’t know I had an AVM but the evidence was there for 34 years… born with port wine stain birthmarks above and behind my right ear. Had several ‘warts’ removed from the area as a child… they would just bleed for no reason…Not breathing at birth, stopped breathing randomly at 18months, suffered from heat stroke with intense vomiting from early years, often had dizziness, fainting, blurred vision, head aches, and general feelings of unwellness. I was told it was vitamin B deficiency and I worked too hard staring at a computer screen… after the event my birthmarks made me a textbook case scenario according to some GPs…My neurosurgeon told me it was stress and to live a low stress life… so 18 months later I had twins! not what the doctor prescribed
I think it’s great if you could compile evidence of symptoms that show an AVM could be present.
Good luck with your recovery. It’s an ongoing thing but it does get better.
Look forward to reading more on your research.