My AVM bled a few years ago, which is how I learned I had one in the first place. (Although it took about 5 years from start to finish for a diagnosis.) Once I knew it was an AVM I saw Dr. Robert Starke at Jackson Memorial Hospital in Miami twice. He was fantastic and did two embolization procedures for me. My husband and I moved up north about 3 years ago and now live in Berkshire County. So Dr. Bay is my AVM doc now.
Dr. Bay did an embolization on me in 2019 and confirmed that the AVM has resolved. All of the issues that I have now existed before any embolization procedures.
My AVM was located behind my left eye. If the embolization was not successful, I would have needed a craniotomy most likely. I am disabled and have myasthenia gravis, fibromyalgia, CFS, chronic gastritis, IBS, anxiety, depression, panic disorder, among other things. My body is sort of a mess. haha. (In people with myasthenia gravis, anesthesia is a risk in general.)
My case is very complicated, as I assume any orbital AVM would be. I’m not sure how big it was, but here is a link to some animated gifs of the dye contrast to give you an idea.
Let me know if you have any more questions! (Sorry, no FB for me, just IG.)