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AVM Survivors Network

Lung AVM surgery/HHT

#1

I recently found out that I have HHT and AVM's in my lungs. One of them is "significant" and in a rare spot. I have surgery next week Tuesday to hopefully take care of the large AVM. I am wondering if anyone has any experience with lung AVMs and/or HHT. I am pretty new to all of this. I have only had the diagnosis of HHT for about a month after having a stroke in December 2014. I don't have many symptoms that I am aware of except I am becoming more and more out of breath doing physical activity. I had heart surgery last February and had several complications so I am very nervous about the up coming procedure. Any info would be greatly appreciated!!