So we had a great get-together today in London, organised by @corrine. We had myself, Corrine, @Valeriehassan and Valerie’s husband, from AVMsurvivors; we had Craig and his family all the way from Norwich and Dan all the way from Bristol… almost a national get together rather than a London get together! The other guys are AVM acquaintances through a Facebook group, rather than this group.
I’d say we had a great time out. I thought we had a really interesting catch up with each other, despite that our only common ground is our AVMs.
And I would venture to say that Craig’s wife has been an amazing support to their family, as Craig had a stroke on board an international flight a couple of years ago, had a long time recovering in hospital and is still regaining his mobility.
We’re planning to try to get together again in the New Year, after Corrine has had her first embolisation.
I’m hoping someone shares a picture or two with me that we might show we did get together!