I understand Mia. I’ve been thinking about it myself… my AVM is invisible, whereas hers I assume is less so. Equally, I can do most (sensible) things, so it isn’t limiting me at the moment. My head used to have a big pulse on the back that would show, and when it was first treated, felt more swollen on one side but I’ve got nothing to show for it just now.
As Corinne says, the common ground is going through similar worries, similar procedures perhaps. To go to a worthwhile venue is good, too.
My plan is to just come as me but if it would help, I might persuade family with me. I asked the other day and wasn’t greeted with enthusiasm but I could ask again!!
Are we thinking a Saturday? I can do Sundays or I could squeeze an afternoon / evening but a Saturday would work well for me.
At the end of the day, my enthusiasm for meeting is that I’ve shared a lot with a slightly anonymous world and it would be very nice to meet people face to face. Equally, half my motivation on here is to support other people, so I’m keen to turn out for an event if it helps you guys. I think the four of us is OK but it would be great if others fancy coming along, even if only for a cup of tea. Hint hint anyone reading…
Lots of love,