I can only imagine your courage and that of your beautiful daughter... we have been very lucky so far.... the worst symptoms Robin has had thus far has been periodic dizzy spells and they have resolved since the cortical venous drainage was eliminated after the 2nd embo. We feel very blessed to have connected with Dr. Rosenwasser and have been so impressed with the care we've received at Jefferson.
We keep joking about moving to Philly since we seem to be spending so much time there! I will keep Jaclyn and you in our prayers..... reading some of the stories here, people have so much courage, and such a giving spirit.... we are humbled by it all!
Blessings to you and Jaclyn for the new year!!
Kim (Jaclyn's mom) said:
Hi Joy! Yes! My daughter has been treated by Dr Rosenwasser at Jeff since 2003. She had 1 embo, 2 Gamma Knife treatments, and in April of 2009 had LINAC. Unfortunately in her case, a 2nd avm formed 4 years after Gamma Knife so they treated the 2nd one with LINAC. About 6 weeks after LINAC, she had her 1st grand mal seizure that they say was triggered by brain swelling from the radiation. Please keep in mind that she was 6 when she had her bleed and is 14 now. Treatment and symptoms in children do differ from adults so dont be discouraged. Jeff's Neuroscience Ctr IS the BEST in the tri state area. Good luck to you and your husband and pleAse keep in touch. Maybe someday we"ll cross paths on the streets of Philly!