Hi everyone, sorry to bother you all again but I need your advice. I’m at hospital after going to A&E last night and staying the night.
So the last week I have noticed some things: needle like head aches, I have been bumping into people and blocking people considerably more oftern that usual, been struggling to visually focus on things more than before.
On friday I felt really wiped out, staying in bed all day, this was the first time since my op I’ve felt so out of it. Only went to the gym once last week on monday so doesn’t make sense (3-4 times a week before) and didn’t push myself as much as I usually do.
Yesterday I felt completely burnt out, exactly the way I felt before my op when my AVM was extremely high flow and subsiquently causing brain damage. The back of my head and neck was hurting and what alarmed me to call 111 was my vision going in and out of focus being very blurry. When walking I felt nauseous and light headed when looking side to side to make up for my right visual field loss (result of stroke during embo earlier this year).
I am now at UCLH. Sight still blurry when moving my head or moving around. I had a CT scan during the night and results show I have had no bleed or heamorrhage. The nurses wanted to make me go home but then decided to let the day doctor team see me. They can then contact my neuro team to decide whether I should have my angiogram brought forward. Should I push for this? Do you think blurred vision could be relavent to my left occiptal AVM?
I haven’t had an angiogram since my embolisation (26/01/18) due to having over radiation during the embo due to stroke (in op) causing extensive hair loss. Plan is to have an angio in September to ensure my scalp is recovered and all is stabilised. I feel worried my AVM blood flow might be high again which might explain why I feel like I did pre-embo. Do you think this is rational or over-thinking? In your opinions do you think it makes sense to push to be seen by my neuro team even if the non-neuro docs decide not to bother since I’ve had no bleed?
Please let me know your opinions - I understand your not specialised medics but still would help assure me