Hello all my AVM survivors!
I just wanted to write & let you all know I am taking a break from this sight for a while...it is causing me great anxiety due to the fact I have not yet had my AVM treated. I had talked to my doctor last week & she said she agreed that until I figure out what I'm going to do to take a break for a while to sort things out. I have a lot of people tell me this is a ticking time bomb in my head & it will eventually bleed, however, I was told not all AVM's bleed & it's hard for me to hear this from people who are not all educated on AVM's & just because their AVM bled, does not mean mine will.
I am trying to stay positive through this whole ordeal & there are days that my over-worrying is killing me. I feel if I can get my life on track & go back to living normal my anxiety level will go down. I will keep you all posted periodically, as this is my year to figure this thing out if I am going to go through surgery to try to get this removed or decide to live with it & pray it never bleeds.
I wish you all the best of luck & pray for each & everyone of you every day who survived, who is dealing with a bleed, who is starting treatment, or who is struggling on deciding to live with it. I just can't imagine going through surgeries upon surgeries when this has not caused me any problems & think I would rather just deal with it if I every have a bleed. I hope to bring awareness of AVM's to people & to stop feeling like I should be afraid to tell people about it. I generally don't like to bring attention to myself so I think that's why a lot of my friends and family don't know about it.
Thank you all for being here for me when I needed to vent or have someone who understands. I hope to be back later this year with an update-Love you all & take care!!!
Marcy