I had surgery on my right cerebellum Jan. 6, 1992. This was at University of Chicago Hospital, the Brain Center. Dr. Sean Mullen did the surgery.
I just had an MRI for headaches and the results show that I have cephalomacia with/from infarct.This showed up in the area of the previous surgery. I looked up the terms and it means brain softening due to an injury, stroke, or other event in the brain. Of course, I had the AVM from birth (congenital) and I know that there were several episodes of extremely excruciating headaches with hospitalization & outpatient treatment. They didn't know then that it was from an AVM leak. One spinal tap showed clear spinal fluid but high pressure, which they told me meant I either had a hemorrhage/leak or had a brain tumor. At that time there were few places that did MRIs, so I didn't follow up until symptoms Xmas 1991 & surgery Jan. 6, 1992.
My AVM was swollen & pressing on nerves at the brain stem, which caused facial stinging shooting pain and bottom lip numbness. That's why a CAT-scan, a brain angiogram, and MRI were ordered which detected my AVM. All options except surgery were out. Thankfully, it saved my life with no permanent damage though when I went back to work teaching at my college, my former students asked if I was ok, so I told them, "It wasn't in a cognitive area, so there is no dain bramage." They looked at me a little bit, then got it! We laughed--and life went on.
Okay. So what I want to know at this point, is this just scar tissue from the surgery? Or is it damage from the previous known leaks (before we even knew what I had. I mean, going back to teen years, my 20s and my 30s).
Or is this indicating I had a stroke??? Anybody familiar with cephalomacia/infarct?